November 16, 2011
So I just arrived back in Boston this evening and figured you were all due for an update! The time in Rwanda was very busy and very productive for PURE. Since I checked in last, Emily Douglass, our priceless and incredibly helpful MGH ED Ultrasound Division intern joined me to help with the assessments and meetings at Kibagabaga, Ruhengeri and Gihundwe hospitals. I never got used to her telling people I was her ‘boss,’ but I can tell you that we wouldn’t have gotten nearly so much done without her very hard work! Overall, there were successful visits to all five provincial hospitals and meetings with hospital leadership and interested staff physicians at each respective site to continue to raise awareness, support, and interest in our proposed training program. I re-investigated the ultrasound machines at each site to compare to findings from my March needs assessments and I’m happy to confirm that both Ruhengeri and Kabgayi have just been the recipients for two brand new Mindray ultrasound machines each! These great machines came to them from the Ministry of Health (MoH), by way of a donation by the Global Fund, and this increase in machine capacity is great news for both of these busy hospitals! Our three other sites all have functioning machines, however their ability for image storage for quality review is a challenge so we are currently discussing allocation of other donated machines with image storage capacity with the MoH.
I had very productive meetings and received good feedback from Dr. Patrick and Dr. Sanctus, the head deans at the Faculty of Medicine for the Rwandan National University. We are now working with them as they review our strategic action plan and details of our curriculum. Once we make any necessary amendments and get their official approval, we will again discuss CPD accreditation with the Rwandan Medical Council where we have a CPD provider application pending.
Damas and I presented to the Rwandan National Ethics Committee this past Saturday. We discussed the background of PURE, our proposed training program and the research questions that were born out of this training program, in order that we should help further the limited evidence based with regards to the efficacy of this type of training program and its impact on patient management. Our hope is that these outcomes data will help find the optimal approach for further scale-up of diagnostic ultrasound training programs in Rwanda. We anticipate formal feedback from the RNEC by email this week and then Damas will help get the final version of the protocol submitted for approval.
From here, will we will continue to focus on our fundraising efforts. I’m happy to report we just officially received of 501c3 status from the federal government in the US so we are setting up a payment system for direct donations through our website so stay tuned for more updates and please direct friends, family and colleagues to our website for donations!
– Trish Henwood
3 November 2011
Hello from Rwanda! On behalf of PURE, I have gotten little sleep but have definitely have been off to a running start…firstly thanks go out to Dr. Damas Dukundane, PURE’s logistics coordinator, who has definitely helped me with a lot of logistics (especially as neither of my bags decided to join me in Rwanda initially) and to Jean Paul Iyamuremye, who I have dubbed the transportation director for PURE, who has been carting me all over the country! Yesterday I travelled to Rwamagana district and had a great meeting with Dr. Jean Claude who is the hospital director there. I am happy to report that we secured a glowing letter of support for PURE from he and the Rwamagana district mayor which will help us with our registration as an international NGO working in Rwanda. I also had great meetings with several members of the clinical staff at the hospital who are interested in ultrasound and I got their input in a number of areas.
Today I was invited to attend a conference put on by the Rwandan Medical Association and the Rwandan Medical Council (physician licensing body in the country) on continuous professional development, otherwise known as the hot topic of ‘CPD’ in Rwanda. The Honorable Dr. Agnes Bingawaho, the Rwandan Minister of Health, opened the meeting with her perspective on the importance of continuing education and training as well as academic productivity, especially encouraging Rwandan physicians to start publishing on the huge strides the health sector has been making in the last few years. At the meeting I got to reconnect with Dr. Michael Miller, one of the Rwandan Family Medicine Residency faculty members from the University of Colorado, to hear more about the great work and growing program he and his colleagues have created.
I had previously met with Dr. Eugene Ngoga of the Rwandan Medical Council (RMC) during my initial visit in March, and today we reconnected to discuss official accreditation for PURE by the RMC. I will be completing the necessary documentation in the next few days and we are hopeful that PURE may become one of the earliest recognized CPD providers in Rwanda!
Tomorrow I will start my day with meetings at the Ministry of Health and then I will head to Kibagabaga hospital which is one of the provincial hospitals very close to downtown Kigali. There I will meet with hospital leadership and interested physicians to discuss our training program in more detail and will reassess the ultrasound machine capacity at that site. I am excited to report that I have heard through the grapevine (a reliable grapevine that is J) that there have been brand new ultrasound machines delivered within the last week to both Kabgayi and Ruhengeri hospitals. I will be headed there next to week so investigate in person and will definitely keep you all updated on that!
– Trish Henwood
Hey everyone, PURE had the great fortune to be presented at the third annual RAD-AID International conference yesterday. Trish and I met so many fantastic people, all dedicated to bringing appropriate radiology to the developing world. What I mean by appropriate is that the findings will serve a purpose in the context of the particular healthcare systems capacity, i.e. nobody needs mammography if there are no breast surgeons or oncologists to treat a positive finding. Anyhow, the other ultrasound work that people and organizations are dedicated to is just awesome, and PURE can learn so much from their experiences. Notably, Imaging the World and their unique approach to training healthworkers to do ultrasound sweeps that are then interpreted by radiologists and sonographers (sonographers in Uganda are trained to interpret ultrasounds) have achieved incredible things including being awarded a Gate’s Challenge Grant (http://imagingtheworld.org/). Dr. Bill Marks has done ultrasound training all over the world, and will be publishing a book on his experiences and recommendations, I attached a PDF below of his. Tarek S. El-Shayal, principal of the East Africa Aid foundation (http://www.eastafricaaidproject.org/) had a lot of great advice based on his experiences trying to bring equipment to the hospitals and clinics he partners with. We can learn a lot from the experiences of Dr. Robert Nathan and his partners working on training midwives in focused high yield ultrasound, they too have impressive achievments in obtaining support from foundations and corporations (http://change.washington.edu/projects/mobile-midwives-ultrasound/). As far as I know PURE represented the only non-radiology based efforts at ultrasound training at this conference, and it was great for us to network with these other groups we may not have had as much access to otherwise. I also attached the ppt that was presented, in case anyone wants a quick and dirty overview of the project.
Trish leaves for Rwanda today! Really excited about what she’s aiming to get done while there, and we’ll keep you all posted.
The last week has been a whirlwind of PURE activity between all of us that make up our core group, busting our butts to get all of the paperwork together in order for Trish to meet with the Rwandan National Ethics Committee while she’s in country to get their approval of our research agenda. I posted a PDF of the file for all those interested. This is a rough sketch of our research plans, but I think it gets at the meat of what we’re trying to accomplish. Next up is working on the American IRB and continuing to come up with important things to be addressed during the trip. Please get in touch if you’re in Rwanda and would like to meet with Trish!
This is my formal commitment to all of you reading these updates that I will do better from here on out. No excuses, just apologies and promises to do better. Since the last post in July we’ve formed a fantastic working group up in Boston to finish up the curriculum design. We’ve been lucky enough to draw the interest of Dr. Alice Murray, an MGH international emergency ultrasound fellow and experienced in Rwanda. She’s been working with other new team members like Dr. Josh Rempell, a current EUS fellow at MGH, as well as Emily Douglass an intern from Northeaster University. In addition to curriculum design they’re all working on American IRB approval of our research agendaTrish is doing her best to make a return trip to Rwanda happen next month in order get our MOU signed, submit all the INGO registration paperwork, and complete the Rwandan national IRB approval process. My goal now is to work on publicity, fundraising, networking, and trainer recruitment. As all these pieces come together we get closer and closer to a launch date. I still can’t predict this exactly, but we’re shooting for early 2012. Action items that YOU can help with:
– donate through our friends at Good/Works global
– subscribe to our twitter feed and spread the word
– like us on facebook
– subscribe to the e-mail list
– reconnect if you previously were interested in getting involved but have lost touch
– if you’re ultrasound trained, and looking to travel, get in touch about becoming a trainer
Any help is good help, so please don’t hesitate to e-mail email@example.com if you want to get more involved, thanks!
I can’t believe the last post here was over three months ago! If anything, the paucity of posts is a reflection of how many other things are demanding my attention when it comes to PURE; we’ve made so much great progress in the past three months. As I hope you were able to read in the latest e-mail update, we’ve settled on a specific plan for the pilot program based on direct requests of the Rwandan MoH. The project description has been updated with the details of this action plan, so check it out if you didn’t have a chance to read the document attached with the last e-mail. In order to execute this plan we’re doing everything we can to help connect the Rwandan government with potential sources of ultrasound equipment donations or low-cost purchasing options. Provision of equipment by PURE is out of reach of our small, education focused organization, and we would prefer that the equipment be fully owned by Rwanda. To support the costs of executing our training and thoroughly studying the outcomes we’ve projected financial needs of approximately $50,000. Within the next couple weeks I hope we have a solid plan for accomplishing this goal. There are lots of elements already at work (like the support of our friends at Good/Works Global, check it out!) but my goal is to have a list of many different means of raising these funds so we can divide and conquer in maximizing our efforts. $50,000 is the minimum we need based on the current plan, but anything we can raise above that will ultimately just make this program stronger and give us more options for an intense longitudinal analysis and helping to support our trainees/hospitals over the long term. We have obtained fiscal sponsorship from Good/Works, so all donations/support will be tax deductible for the donors/partners, but we are still working on our own 501c3 application. We need to finish formal International NGO registration in Rwanda, obtain IRB approval both here and in Rwanda, and complete a formal write up of our curriculum to submit to the RMC for CPD approval. There’s so much to do still, but we’re well on our way to getting it all done. Get in touch if there’s something specific you want to get more involved in!
Trish recently returned from her time in Rwanda making in person introductions of PURE and learning about the needs and current capacity of various district hospitals. She met with leadership in the MoH, the Rwandan Medical Association (a doctors and patients civil advocate group), and the Rwandan Medical Council (the government branch responsible for medical education). In general our group and plans were very well received, the challenge now is to determine the best way to integrate our abilities with the needs we learned of through this trip. More to details on this soon, there’s still a lot of information to synthesize. We have formed a formal board of directors as posted on The Team section of this site. This is necessary for decision making related to the incorporation process and other organization matters. The law students are hard at work on the incorporation process, and the board is currently reviewing the bylaws for approval. Once we have become an entity we will establish a fiscal sponsorship agreement with Goodworks Global while we work to obtain our own nonprofit status. This will allow us to receive tax deductible donations as well as qualify us for many grants that require an NGO to have 501c3 nonprofit status. Our group was recently featured in the EMRA “What’s Up in Emergency Medicine” publication, you can find the article here – http://www.emra.org/emra_articles.aspx?id=43551.
There are three law students from the University of Pennsylvania that along with the help of a faculty member have volunteered to help us navigate the legal aspects of the incorporation process, I´ll be meeting with them later this week. Additionally, there are several members of our group working on this process and finding sources of potential funding. Finally, I´ll be presenting our organization as a social enterprise pitch at the 2011 Unite for Sight global development conference this April in New Haven, CT.
A couple e-mails went out to the group over the past week detailing our progress in making contact with the MOH. They requested to choose the particular district hospital we partner with and we are still waiting to here. A copy of the project description that was sent to the MOH is in the files section. We’ve sent them the document and requested that they make it official on letterhead and with signatures and such. When we hear from them again we’re going to ask if they would be able to select 3 hospitals and we could choose among the hospitals after a visit to each site to speak with the physicians there and conduct a formal needs assessment. If all goes according to plan the assessment will happen in March.
In order to qualify for more donations and grants we’re looking into the incorporation process and ultimately obtaining 501c3 nonprofit status. Additionally, we bought the domain pureultrasound.org for our organization to appear more professional, though it just directs to this google site for now. If anyone knows of an attorney that may be able to offer us some pro bono help with this process please get in touch.
Finally, we’re going to start moving forward with curriculum development and program design in order to best facilitate study of the effectiveness of our approach.
One of the things I’m working on presently is getting formal permission/and invitation from one of the district hospitals for us to start our project there this spring. Just wanted to update you all on the avenues we’re looking down and the contingency plans if we dead end…
– Assist International – Ray Schmidt, our contact there, has been busy in Rwanda installing 3 new ultrasound machines until basically this weekend. He’s to return to work next week and hopefully he’ll have been able to propose our plans to one of the hospitals he visited. I will hopefully be in touch with him about it next week.
– The Access Project – Dr. Blaise Karibushi is the country director. He will return to Rwanda this Monday and is really excited about the project. He’s going to work on getting us in at a hospital and with the MOH as of his return.
– Various contacts – this is the contingency plan presently! A number of you are living and working in Rwanda presently, and some have direct contacts at the MOH and district hospitals. If by mid December we don’t seem to be making any progress with the current plans, we’ll look down these other routes.
What do you think? please share any suggestions or other ideas you have! thanks